At the 7^th of December 2018 the annual in-between meeting of SIG Communication & Swallowing will take place in Haslev, Denmark. The topic of this meeting will be “Moving from evidence to daily practice”. Our meetings are always interactive and informal. The goal of this meeting is to inform each other about current projects and results and exchanging practice routines.

The meeting is now open for registration.

MEETING AGENDA

Local Organizers: Louise Hoval Nørgaard at the Sclerosehospitals Denmark
Chair and Co-Chair SIG Swallowing & Communication: Leonie Ruhaak (NL) and Francesca De Biagi (I)
RIMS Chair: Vincent de Groot (NL)

Thursday December 6^th - Location: Hotell Comwell Køge, Strandvejen 111, 4600 Køge

• From 19.00 – Welcome Diner

Friday December 7^th - Meeting Venue: Sclerosehospital in Haslev, Ringstedvej106, 4690 Haslev

• 08u45 - 09u00: Registration
• 09u00 - 09u10: Welcome (Brita Løvendahl)
• 09u10 - 10u30: Introduction/exchanging working routines and experiences (Louise Hovald Nørgaard & Leonie Ruhaak)
• 10u30 - 11u00: Coffee Break
• 11u00 - 12u00: Guided Tour in MS Hospital Haslev (TBC)
• 12u00 - 13u00: Lunch
• 13u00 - 15u00: Presentations of current studies/projects
  • Respiration: diagnostics and therapy (Julie Decondé)
  • What can oral stories tell us about cognitive fatigue and language in MS? (Leena Maria Heikkola)
  • Dysphagia (Leonie Ruhaak)
  • TBC
• 15u00 - 15u30: Coffee Break
• 15u30 - 16u30: Session 5: Discussion on ethics of communication and swallowing in MS
• 16u30 - 17u00: Future plans and goals

SIG Chair - Leonie Ruhaak

Friday 23th – Saturday 24th November 2018
Marianne-Strauß-Klinik, Berg, Germany
The autonomous MS patient - Defining evidence gaps and setting an agenda for new collaborations

GENERAL OUTLINE

We would like to use this meeting to define where we are now regarding “patient autonomy in MS” and find ideas where to go next. Therefore, the first day will be used to provide an update on existing projects inspired by the MRC framework. Here, we will identify also research gaps. The next day will be used for group work to find ideas for new (SIG) projects. We will discuss those projects and present the most promising ideas to the whole group in order to choose our next SIG project to work on. All participants are invited to present their projects and project ideas by the end of October.

MEETING AGENDA

Friday, 23 November

• 12:00 – 12:30 : Lunch
• 13:00 – 15:00 : Where do we stand (part 1)? *An overview guided by the MRC framework.
  OVERVIEW:
  • The RR/SPMS patient
    • Treatment decision-making
    • MRI education
    • Lifestyle
    • Motherhood choice
    • Transition to SPMS

All partcipants are invited to present their work here. Just send us an e-mail by the end of October.

• 15:00 – 15:30 : Coffee
• 16:00 – 17:15 : The Marianne-Strauß-Klini
• 17:15 – 18:30 : Where do we stand (part 2)? *An overview guided by the MRC framework.
  OVERVIEW:
  • The patient with severe MS
    • Guideline on palliative care
    • Home-based palliative care (PeNSAMI)
    • The PPMS patient
    • ...?

All partcipants are invited to present their work here. Just send us an e-mail by the end of October.

• 19:30 : Social diner

Saturday, 24 November

• 09:00 – 11:00 : Where do we need to go?
• 13:00 – 15:00 : Where do we stand (part 1)?
• An overview guided by the MRC framework.
  GROUP WORK:
  • Three/four groups (RR/SPMS (motherhood choice extra?), severe MS, PPMS, pediatric MS?
    Where do we need:
    • Reviews
    • Surveys (e.g. to define information needs)
    • Interventions
• 11:00 – 11:30 : Coffee
• 11:30 – 13:00 : Project idea presentations and discussion
• 13:00 – 13:15 : Meeting wrap-up
• 13:15 – 14:00 : Lunch and farewell

SIG Bladder, Bowel & Sexuality in-between meeting

Dear colleagues and friends,

We are pleased to announce the next SIG Bladder, Bowel and Sexual Dysfunction in-between meeting will be hosted in London at the Glasgow Caledonian University LONDON CAMPUS on Friday 26th October 2018, with Doreen McClurg as the local organiser. The theme of this 1-day meeting will be “Innovations in the treatment of the neurogenic bladder and bowel”. This meeting aims to bring together leading researchers and clinicians to discuss the contemporary and innovative scientific and clinical developments related to rehabilitation of the bladder and bowel in MS.

Broadly, the programme for the meeting includes keynote speakers and workshops. Confirmed keynote speakers include: Dr Jalesh Panicker a Consultant Neurologist in Uro-Neurology at the National Hospital for Neurology and Neurosurgery, and Honorary Senior Lecturer at the UCL Institute of Neurology, Queen Square, London; Dr Nikki CotterillPost Doctoral Nurse Fellow, University of west of England with a special interest in the neurogenic bladder and outcome measures and Professor Doreen McClurg, a Physiotherapist with experience in undertaking research in bladder and bowel dysfunction in people with MS. The workshops will be hosted by faculty members and will focus on novel interventions as well as the way forward for the SIG group

The meeting is kindly sponsored by Rehabilitation in Multiple Sclerosis (RIMS) therefore RIMS members do not pay any registration fees. One night’s free accommodation (Thursday or Friday only) will be offered to RIMS members at the nearby IBIS Hotel Whitechapel, members are asked to please consider sharing accommodation) in addition to lunch and refreshments. Non-RIMS members are welcome to attend the meeting (registration £50 for attendance). Non-RIMS members are welcome to stay at the IBIS Hotel or any of the numerous hotels near the location.. RIMS members who wish to benefit from the one night’s free accommodation and Non-RIMS members who would like the preferential room rate must reserve accommodation with conference organisers (Doreen.mcclurg@gcu.ac.uk) by 28^th September 2018. Registration for both RIMS and non-RIMS members will be open until 5^th October 2018

Programme

10.00 Registration and tea/coffee

10.30 Dr Nikki Cotterill – Associate Professor in Continence Care at UWE ‘Progressive MS and Incontinence.: What is the impact?

11.00 Dr Doreen McClurg – Professor in pelvic floor physiotherapy, Glasgow Caledonian University ‘Abdominal Massage for bowel dysfunction’

11.30  Dr Doreen MCClurg – Video presentation on abdominal massage

12.00 Tamsyn Street, Research Fellow, Salisbury NHS Foundation Trust. ‘Abdominal Functional Electrical Stimulation and Constipation. A case series report’

12.15 Workshops – Case studies on Neurogenic bowel

12.30 Lunch

13.30 – Speaker to be confirmed, update on trans anal irrigation and catheters

14.00 -  Speaker to be confirmed ‘Percutaneous/transcutaneous electrical stimulation for urinary incontinence in neurological condition’

14.30 Dr Jalesh Panicker –  Consultant Neurologist in Uro-Neurology, National Hospital for Neurology and Neurosurgery, Queen Square London.  ‘The MS patient reporting bladder disturbances- how to assess and manage’ 

15.00 SIG Bladder, bowel and sexual dysfunction – progress on survey, the way forward for the SIG

15.30 -16.00 Summary of the day and suggestions for future topics

REGISTER NOW: www.eurims.org

In-between meeting SIG Occupation

We are happy to announce the next in-between meeting for Special Interest Group (SIG) Occupation to be held in Haslev/Copenhagen, Denmark 23. – 24. November 2018

The new title of the meeting will be: «2+2=5 – the syngergies of multidisciplinary rehabilitation in MS»

We would like to promote all the positive effects of health care professionals working together to provide the best MS rehabilitation. The expression 2+2=5 comes from the thought of the whole being greater than the sum of the parts, and in that way rehabilitation is greater than the sum of professionals.

Online registration will soon be open.

Local organizers: Heidi V. Jacobsen and Lene M. Kallmeyer at the Sclerosehospitals in Denmark. For more information, contact ingergrethe.loyning@mssenteret.no or sofie.ferdinand@mscenter.be