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SIG Patient Autonomy Meeting - 16 - 17 November 2017

From 16/11/2017 until 17/11/2017
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OPIC: THE EXPERT MS PATIENT: MOVING ALONG THE ILLNESS TRAJECTORY

LOCATION: FONDAZIONE IRCCS ISTITUTO NEUROLOGICO "C BESTA" VIA CELORIA 11, 20133 MILAN - ITALY

MEETING AGENDA

Agenda

THURSDAY, NOVEMBER 16 (ONGOING PROJECTS)

11:00 – 11:30 Welcome, outline of the meeting, and of the day C Heesen, A Solari

11:30 – 12:00 ManTra - a resource to help patients manage the SPMS transition AM Giovannetti

12:00 – 12:30 Patient information booklets on immunotherapy – German wide project A Rahn

12:30 – 13:00 Engaging MS patients and carers in guideline production A Giordano

13:00 – 14:00 Lunch

14:00 – 14:30 UMIMS: The German project on MRI I Shiffmann

14:30 – 15:00 The Italian IN-DEEP project on MRI C Colombo

15:00 – 15:30 The ‘Ready for MS’ project AM Giovannetti

15:30 – 16:15 General discussion and wrap-up of the day C Heesen, A Solari

16:30 – 17:30 Closed section (SIG members only) C Heesen, A Solari

19:30 Dinner at “ I Valtellina”, via Taverna 34

FRIDAY, NOVEMBER 17 (PROJECTS NOT YET FINANCED AND NEW PROPOSALS)

09:00 – 09:15 Outline of the day C Heesen, A Solari

09.15 – 09:45 weMoMS: update & planning C Heesen, A Giordano

09:45 – 10:45 2018-2020 Financing opportunities: an overview C Finocchiaro

10:45 – 11:00 Coffee

11:00 – 13:00 Presentation* of 4 projects/proposals (20’ each, plus 10’ discussion)

13:00 – 14:00 Lunch

14:00 – 15:00 Feedback from the Grant Office C Finocchiaro

15:00 – 15:30 Meeting wrap-up, farewell C Heesen, A Solari

PARTICIPANTS

  • Anna Barabasch Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
  • Marta Bassi Università degli Studi di Milano, Milan - IT
  • Cinzia Colombo IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milan - IT
  • Marie D’hooghe Nationaal Multiple Sclerose Centrum, Melsbroekbe BE
  • Sara Elgott MedDay pharmaceuticals, Maidenhead - UK
  • Monica Falautano Istituto Scientifico San Raffaele, Università Vita-Salute, Milan - IT
  • Graziella Filippini Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Carla Finocchiaro Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Andrea Giordano Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Ambra M Giovannetti Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Marco Heerings National MS Foundation of the Netherlands, Rotterdam - NL
  • Christoph Heesen Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
  • Katia Mattarozzi Scuola di Medicina e Chirurgia Universita' di Bologna, Bologna – IT
  • Paola Mosconi IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milan – IT
  • Richard Nicholas Imperial College, London - UK
  • Jana Pöttgen University Medical CenterHamburg - DE
  • Rui Quintas Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Alberto Raggi Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Anne Rahn Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
  • Insa Schiffmann Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
  • Alessandra Solari Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
  • Valentina Torri Clerici Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan – IT
  • David Wilkie Imperial College, London - UK

       * Those interested in presenting their projects should send a one-page summary of the project to alessandra.solari@istituto-besta.it  by September 30th, 2017.



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