SIG Patient Autonomy Meeting - 16 - 17 November 2017
OPIC: THE EXPERT MS PATIENT: MOVING ALONG THE ILLNESS TRAJECTORY
LOCATION: FONDAZIONE IRCCS ISTITUTO NEUROLOGICO "C BESTA" VIA CELORIA 11, 20133 MILAN - ITALY
MEETING AGENDA
Agenda
THURSDAY, NOVEMBER 16 (ONGOING PROJECTS)
11:00 – 11:30 Welcome, outline of the meeting, and of the day C Heesen, A Solari
11:30 – 12:00 ManTra - a resource to help patients manage the SPMS transition AM Giovannetti
12:00 – 12:30 Patient information booklets on immunotherapy – German wide project A Rahn
12:30 – 13:00 Engaging MS patients and carers in guideline production A Giordano
13:00 – 14:00 Lunch
14:00 – 14:30 UMIMS: The German project on MRI I Shiffmann
14:30 – 15:00 The Italian IN-DEEP project on MRI C Colombo
15:00 – 15:30 The ‘Ready for MS’ project AM Giovannetti
15:30 – 16:15 General discussion and wrap-up of the day C Heesen, A Solari
16:30 – 17:30 Closed section (SIG members only) C Heesen, A Solari
19:30 Dinner at “ I Valtellina”, via Taverna 34
FRIDAY, NOVEMBER 17 (PROJECTS NOT YET FINANCED AND NEW PROPOSALS)
09:00 – 09:15 Outline of the day C Heesen, A Solari
09.15 – 09:45 weMoMS: update & planning C Heesen, A Giordano
09:45 – 10:45 2018-2020 Financing opportunities: an overview C Finocchiaro
10:45 – 11:00 Coffee
11:00 – 13:00 Presentation* of 4 projects/proposals (20’ each, plus 10’ discussion)
13:00 – 14:00 Lunch
14:00 – 15:00 Feedback from the Grant Office C Finocchiaro
15:00 – 15:30 Meeting wrap-up, farewell C Heesen, A Solari
PARTICIPANTS
- Anna Barabasch Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
- Marta Bassi Università degli Studi di Milano, Milan - IT
- Cinzia Colombo IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milan - IT
- Marie D’hooghe Nationaal Multiple Sclerose Centrum, Melsbroekbe - BE
- Sara Elgott MedDay pharmaceuticals, Maidenhead - UK
- Monica Falautano Istituto Scientifico San Raffaele, Università Vita-Salute, Milan - IT
- Graziella Filippini Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Carla Finocchiaro Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Andrea Giordano Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Ambra M Giovannetti Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Marco Heerings National MS Foundation of the Netherlands, Rotterdam - NL
- Christoph Heesen Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
- Katia Mattarozzi Scuola di Medicina e Chirurgia Universita' di Bologna, Bologna – IT
- Paola Mosconi IRCCS Istituto di Ricerche Farmacologiche Mario Negri, Milan – IT
- Richard Nicholas Imperial College, London - UK
- Jana Pöttgen University Medical Center, Hamburg - DE
- Rui Quintas Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Alberto Raggi Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Anne Rahn Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
- Insa Schiffmann Universitätsklinikum Hamburg-Eppendorf, Hamburg - DE
- Alessandra Solari Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan - IT
- Valentina Torri Clerici Fondazione IRCCS Istituto Neurologico “C. Besta”, Milan – IT
- David Wilkie Imperial College, London - UK
* Those interested in presenting their projects should send a one-page summary of the project to alessandra.solari@istituto-besta.it by September 30th, 2017.